Contact Us

Contact Us
Contact Us2018-10-14T23:14:40+00:00

Need Information on Prader-Willi Syndrome?

We’re here for you. If your child has recently been diagnosed with Prader-Willi Syndrome, we can connect you with someone who knows exactly what you are going through. E-mail us at

Note: We ignore all unsolicited commercial e-mail to this address.

Postal (Snail Mail)

Prader-Willi Syndrome Association of Michigan (PWSA-MI)
6749 South Westnedge Ave. Ste K PMB 210
Portage, Michigan, USA 49002

Prader-Willi Syndrome Association USA (PWSA-USA)
8588 Potter Park Drive, Suite 500
Sarasota, Florida, USA 34238


We can accept voice calls to:
(269) 218-0130

This number is not monitored 24/7.  If you get our voicemail, please leave a message with your contact information. Our typical response time is within two business days.

You can also reach PWSA-USA via voice:
(800) 926-4797

These telephone numbers are NOT meant for emergency calls.  If you have an emergency, please call 911.

PWSA-MI on Social Media

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Our announcement list has minimal traffic. We won't ever send you junk mail. We also will never share your information with any other agency.