Need Information on Prader-Willi Syndrome?
We’re here for you. If your child has recently been diagnosed with Prader-Willi Syndrome, we can connect you with someone who knows exactly what you are going through. E-mail us at info@nullpwsami.org.
Note: We ignore all unsolicited commercial e-mail to this address.
Postal (Snail Mail)
Prader-Willi Syndrome Association of Michigan (PWSA-MI)
6749 South Westnedge Ave. Ste K PMB 210
Portage, Michigan, USA 49002
Prader-Willi Syndrome Association USA (PWSA-USA)
8588 Potter Park Drive, Suite 500
Sarasota, Florida, USA 34238
Telephone / Text Messages (SMS)
We can accept both voice calls and text messages to:
(269) 218-0130
This number is not monitored 24/7. If you get our voicemail, please leave a message with your contact information. Our typical response time is within two business days.
You can also reach PWSA-USA via voice:
(800) 926-4797
These telephone numbers are NOT meant for emergency calls. If you have an emergency, please call 911.